Article

Ballinger, R. S. and Fallowfield, L. J. (2009) Quality of life and patient-reported outcomes in the older breast cancer patient. Clinical Oncology, 21 (2). pp. 140-155. ISSN 0936-6555

Ballinger, Rachel, Ford, Elizabeth, Pennery, Emma, Jenkins, Valerie, Ring, Alistair and Fallowfield, Lesley (2012) Specialist breast care and research nurses' attitudes to adjuvant chemotherapy in older women with breast cancer. European Journal of Oncology Nursing, 16 (1). pp. 78-86. ISSN 1462-3889

Ballinger, Rachel S., Mayer, Karl Fortes, Lawrence, Gill and Fallowfield, Lesley J. (2008) Patients' decision-making in a UK specialist centre with high mastectomy rates. Breast, 17 (6). pp. 574-579. ISSN 0960-9776

Bicudo, Edison, Faulkner, Alex and Li, Phoebe (2020) Patents and the experimental space: social, legal, and geographical dimensions of 3D bioprinting. International Review of Law, Computers & Technology. pp. 1-22. ISSN 1360-0869

Campion, Alice, Tamiru, Abreham, Tsegay, Girmay and Davey, Gail (2015) Reasons for loss to follow-up of patients with podoconiosis in the Amhara Region, northern Ethiopia. International Health, 7 (5). pp. 367-373. ISSN 1876-3405

Catt, S. L., Anderson, J. L. and Critchley, G. R. (2011) Patients' and staff's experiences of multidisciplinary follow-up for high-grade glioma after radical radiotherapy. Psychology, Health & Medicine, 16 (3). pp. 357-365. ISSN 1354-8506

Catt, Susan, Chalmers, Anthony J. and Fallowfield, Lesley J. (2008) Psychosocial and supportive-care needs in high-grade glioma. Lancet Oncology, 9 (9). pp. 884-891. ISSN 1470-2045

Cella, D and Fallowfield, L (2005) Five-year quality of life (QOL) follow-up of adjuvant endocrine therapy for postmenopausal women in the Arimidex (A), Tamoxifen (T), Alone or in Combination (ATAC) Trial. Journal of Clinical Oncology, 23 (16S). p. 577. ISSN 0732-183X

Coveney, Catherine, Brigitte Nerlich, Brigitte and Martin, Paul (2009) Modafinil in the media: metaphors, medicalisation and the body. Social Science and Medicine, 68 (3). pp. 487-495.

Coveney, Catherine, Faulkner, Alex, Gabe, Jonathan and McNamee, Michael (2020) Beyond the orthodox/CAM dichotomy: exploring therapeutic decision making, reasoning and practice in the therapeutic landscapes of elite sports medicine. Social Science & Medicine, 251. a112905. ISSN 0277-9536

Coveney, Catherine M (2014) Managing sleep and wakefulness in a 24 hour world. Sociology of Health and Illness, 36 (1). pp. 123-136. ISSN 0141-9889

Crockett, Rachel A., Weinman, John, Hankins, Matthew, Marteau, Theresa, Unset and Unset (2009) Time orientation and health-related behaviour: Measurement in general population samples. Psychology and Health, 24 (3). pp. 333-350. ISSN 0887-0446

Deribe, Kebede, Tomczyk, Sara, Mousley, Elizabeth, Tamiru, Abreham and Davey, Gail (2013) Stigma towards a neglected tropical disease: felt and enacted stigma scores among podoconiosis patients in Northern Ethiopia. BMC Public Health, 13. p. 1178. ISSN 1471-2458

Fallowfield, L.J (2010) E19. Patient communication. European Journal of Cancer Supplement, 8 (3). pp. 40-41. ISSN 1359-6349

Fallowfield, L.J (2009) The challenge of interacting with patients in oncology. European Journal of Cancer, 45 Sup (Joint). pp. 445-6. ISSN 1879-0852 (Electronic)

Fallowfield, L.J, Fleissig, A., Edwards, R., West, A., Powles, T. J., Howell, A. and Cuzick, J. (2001) Tamoxifen for the prevention of breast cancer: psychosocial impact on women participating in two randomized controlled trials. Journal of Clinical Oncology, 19 (7). pp. 1885-92. ISSN 0732-183X

Fallowfield, Lesley J. (2008) Psychosocial aspects of risk appraisal. Breast Cancer Research, 10. ISSN 1465-5411

Fallowfield, Lesley J. (2008) Treatment decision-making in breast cancer: the patient-doctor relationship. Breast Cancer Research and Treatment, 112. pp. 5-13. ISSN 0167-6806

Fallowfield, Lesley J. (2008) The importance of Communication in Treating Women With Breast Cancer (The Ganz Article Reviewed). Oncology (Williston Park), 22 (6). pp. 650-653. ISSN 0890-9091

Fallowfield, Lesley J. and Fleissig, A. (2012) The value of progression-free survival to patients with advanced-stage cancer. Nature Reviews Clinical Oncology, 9 (1). pp. 41-47. ISSN 1759-4774

Faulkner, Alex, Bloor, Kate and Hale, Vahsti (2021) Definitely maybe: new governance of uncertainty and risk in patient group involvement with UK guidance on testing for Lyme disease. Science, Technology and Society, 26 (1). pp. 116-134. ISSN 0971-7218

Ford, Elizabeth, Boyd, Andy, Bowles, Juliana K F, Havard, Alys, Aldridge, Robert W, Curcin, Vasa, Greiver, Michelle, Harron, Katie, Katikireddi, Vittal, Rodgers, Sarah E and Sperrin, Matthew (2019) Our data, our society, our health: a vision for inclusive and transparent health data science in the UK and beyond. Learning Health Systems. ISSN 2379-6146

Gardner, John, Higham, Ruchi, Faulkner, Alex and Webster, Andrew (2017) Promissory identities: sociotechnical representations & innovation in regenerative medicine. Social Science and Medicine, 174. pp. 70-78. ISSN 0277-9536

Guerra, Mariella, Ferri, Cleusa P, Fonseca, Magaly, Banerjee, Sube and Prince, Martin (2011) Helping carers to care: the 10/66 dementia research group's randomized control trial of a caregiver intervention in Peru. Revista Brasileira de Psiquiatria, 33 (1). pp. 47-54. ISSN 1516-4446

Henok, L and Davey, G (2008) Validation of the Dermatology Life Quality Index among patients with podoconiosis in southern Ethiopia. British Journal of Dermatology, 159 (4). pp. 903-906. ISSN 1365-2133

Hodson, Nathan, Ford, Elizabeth and Cooper, Maxwell (2019) Adherence to guidelines on documentation required for registration to London GP practice websites: a mixed-methods cross-sectional study. British Journal of General Practice, 69 (687). pp. 731-739. ISSN 0960-1643

Holden, Ciara, Bignell, Lauren, Mukhopadhyay, Somnath and Jones, Christina (2019) The public perception of the facilitators and barriers to implementing personalized medicine: a systematic review. Personalized Medicine, 16 (5). ISSN 1741-0541

Jenkins, V.A, Farewell, D., Batt, L., Maughan, T., Branston, L., Langridge, C.I, Parlour, L., Farewell, V. and Fallowfield, L.J. (2010) The attitudes of 1066 patients with cancer towards participation in randomised clinical trials. British Journal of Cancer, 103 (12). pp. 1801-1807. ISSN 0007-0920

Jenkins, V.A., Harder, H., Babar, M., Merry, S., Newbury, S., Kissin, M. and Zammit, C. (2012) A pilot study to examine the experiences and attitudes of women with breast cancer towards one versus two-step axillary surgery. Breast, 21 (1). pp. 72-76. ISSN 0960-9776

Jenkins, Valerie A., Trapala, Ivonne Solis, Parlour, Louise, Langridge, Carolyn I and Fallowfield, Lesley J. (2011) The views of patients and the general public about expensive anti-cancer drugs in the NHS: a questionnaire-based study. Journal of the Royal Society of Medicine Short Reports, 2 (9). p. 69. ISSN 2042-5333

Kengne-Ouafo, Jonas A, Nji, Theobald M, Tantoh, William F, Nyoh, Doris N, Tendongfor, Nicholas, Enyong, Peter A, Newport, Melanie J, Davey, Gail and Wanji, Samuel (2014) Perceptions of consent, permission structures and approaches to the community: a rapid ethical assessment performed in North West Cameroon. BMC Public Health, 14. p. 1026. ISSN 1471-2458

Koutsogeorgou, Eleni, Chiesi, Antonio M and Leonardi, Matilde (2019) Social capital components and social support of persons with multiple sclerosis: a systematic review of the literature from 2000 to 2018. Disability and Rehabilitation. pp. 1-13. ISSN 0963-8288

Lansdown, M., Martin, L. and Fallowfield, L.J. (2008) Patient-physician interactions during early breast-cancer treatment: results from an international online survey. Current Medical Research and Opinion, 24 (7). pp. 1891-1904. ISSN 0300-7995

Matza, Louis S, Fallowfield, Lesley J, Chung, Karen C, Currie, Brooke M, Van Brunt, Kate and Patrick, Donald L (2012) Patient-reported outcome instruments used to assess pain and functioning in studies of bisphosphonate treatment for bone metastases. Supportive Care in Cancer, 20 (4). pp. 657-677. ISSN 1433-7339

Mayer, M., Hunis, A., Oratz, R., Glennon, C., Spicer, P., Caplan, E. and Fallowfield, L.J. (2009) Importance of Providing Tailored Resources to Patients with Metastatic Breast Cancer: Results of the Global BRIDGE Survey. Cancer Research, 69 (24). 674S-674S. ISSN 0008-5472

Mayer, M., Hunis, A., Oratz, R., Glennon, C., Spicer, P., Caplan, E. and Fallowfield, L.J. (2010) Living with metastatic breast cancer: a global patient survey. Community Oncology, 7 (9). pp. 406-412. ISSN 1548-5315

McCrae, Niall and Banerjee, Sube (2011) Modernizing mental health services for older people: a case study. International Psychogeriatrics, 23 (1). pp. 10-19. ISSN 1041-6102

Menon, Usha, Gentry-Maharaj, Aleksandra, Ryan, Andy, Sharma, Aarti, Burnell, Matthew, Hallett, Rachel, Lewis, Sara, Lopez, Alberto, Godfrey, Keith, Oram, David, Herod, Jonathan, Williamson, Karin, Seif, Mourad, Scott, Ian, Mould, Tim, Woolas, Robert, Murdoch, John, Dobbs, Stephen, Amso, Nazar, Leeson, Simon, Cruickshank, Derek, McGuire, Ali, Campbell, Stuart, Fallowfield, Lesley J., Skates, Steve, Parmar, Mahesh and Jacobs, Ian (2008) Recruitment to multicentre trials-lessons from UKCTOCS: descriptive study. BMJ, 337 (a2079). ISSN 0959-535X

Molla, Yordanos B, Tomczyk, Sara, Amberbir, Tsige, Tamiru, Abreham and Davey, Gail (2012) Patients' perceptions of podoconiosis causes, prevention and consequences in East and West Gojam, Northern Ethiopia. BMC Public Health, 12. p. 828. ISSN 1471-2458

Monson, Kathryn, Parlour, Louise, Simcock, Richard, Fallowfield, Lesley and Jenkins, Valerie (2012) Group recruitment sessions enhance patient understanding in a small multi-centre phase III clinical trial. Contemporary Clinical Trials, 33 (2). pp. 286-290. ISSN 1551-7144

Mousley, Elizabeth, Deribe, Kebede, Tamiru, Abreham and Davey, Gail (2013) The impact of podoconiosis on quality of life in Northern Ethiopia. Health and Quality of Life Outcomes, 11. p. 122. ISSN 1477-7525

Pollard, Alex, Bradley, Jasmin, Cooper, Maxwell, Sadhwani, Shanu, Northam, Antonia and Llewellyn, Carrie (2019) The NHS England Fundamental Information Standard for Monitoring Sexual Orientation. British Journal of General Practice, 69 (679). pp. 94-95. ISSN 0960-1643

Rosemann, Achim and Chaisinthop, Nattaka (2015) The pluralization of the international: resistance and alter-standardization in regenerative stem cell medicine. Social Studies of Science, 46 (1). pp. 112-139. ISSN 0306-3127

Shenouda, John and Cooper, Maxwell (2018) [Responses] The social determinants of health: what's missing? BMJ Global Health, 3 (e00060). ISSN 2059-7908

Shenouda, John E A and Cooper, Maxwell (2017) 'One big family': pastoral care and treatment seeking in an Egyptian coptic church in England. Journal of Religion and Health, 56 (4). pp. 1450-1459. ISSN 0022-4197

Smith, A.B., Rush, R., Fallowfield, L.J., Velikova, G. and Sharpe, M. (2008) Rasch fit statistics and sample size considerations for polytomous data. BMC Medical Research Methodology, 8. ISSN 1471-2288

Stockdale, Jessica, Cassell, Jackie and Ford, Elizabeth (2019) “Giving something back”: a systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Research, 3 (6). pp. 1-24. ISSN 2398-502X

Tora, Abebayehu, Franklin, Hannah, Deribe, Kebede, Reda, Ayalu A and Davey, Gail (2014) Extent of podoconiosis-related stigma in Wolaita Zone, Southern Ethiopia: a cross-sectional study. SpringerPlus, 3. p. 647. ISSN 2193-1801

Treasure, Tom, Fallowfield, Lesley, Lees, Belinda and Farewell, Vern (2011) Pulmonary metastasectomy in colorectal cancer: the PulMiCC trial. Thorax, 67 (2). pp. 185-187. ISSN 0040-6376

White, Lucy, Cooper, Maxwell and Lawrence, David (2018) Mental illness and resilience among sexual and gender minority refugees and asylum seekers. British Journal of General Practice, 69 (678). pp. 10-11. ISSN 0960-1643

Yakob, Bereket, Deribe, Kebede and Davey, Gail (2008) High levels of misconceptions and stigma in a community highly endemic for podoconiosis in southern Ethiopia. Transactions of the Royal Society of Tropical Medicine and Hygiene, 102 (5). pp. 439-444. ISSN 0035-9203

Book Section

Faulkner, Alex (2017) Blood informatics: negotiating the regulation and usership of personal devices for medical care and recreational self-monitoring. In: Quantified Lives and Vital Data: Exploring health and technology through personal medical devices. Health, Technology and Society . Palgrave Macmillan, London, pp. 203-228. ISBN 9781349952359

Rosemann, Achim (2017) Challenges to international stem cell clinical trials in countries with diverging regulations. In: Pham, Phuc Van and Rosemann, Achim (eds.) Safety, ethics and regulations. Springer, Heidelberg and New York, pp. 301-319. ISBN 9783319591643

Wi-Hongi, Ahi, Greig, Adeline and Hazenberg, Evan (2017) Towards a model of informed consent: trans healthcare in Aotearoa New Zealand. In: Hazenberg, Evan and Meyerhoff, Miriam (eds.) Representing trans: linguistic, legal and everyday perspectives. Victoria University Press, Wellington, pp. 153-170. ISBN 9781776561759

Conference or Workshop Item

Mulenga, Tamara, Lawrence, David and Cooper, Maxwell (2018) "The biggest untold story in Zambia". Barriers to quality health reporting and the influence of new media: in-depth interview study with Zambian journalists. In: Global Health Symposium 2018, 26 & 27 April 2018, Belfast.

Prentice, Rebecca and Trueba, Mei (2015) Precarious bodies: occupational risk assemblages in Bolivia and Trinidad. In: Precarious Economy: Informality and Entrepreneurship at the Bottom of the Pyramid’. Precarious Labour, Precarious Lives Discussion Panel, December 2015, Sussex University.

Shenouda, John and Cooper, Maxwell (2017) Health beliefs, behaviours & access among Egyptian Coptic migrants in England. In: Royal College of General Practice annual conference, 12 - 14 October 2017, Liverpool.

Conference Proceedings

Al-Jefri, Majed M, Evans, Roger, Ghezzi, Pietro and Uchyigit, Gulden (2017) Using machine learning for automatic identification of evidence-based health information on the web. Published in: Conference Proceedings of the 2017 International Conference on Digital Health; London, UK; 2-5 July 2017. 167-174. Association for Computing Machinery ISBN 9781450352499

Ford, Elizabeth, Stockdale, Jessica, Jackson, Richard and Cassell, Jackie (2017) For the greater good? Patient and public attitudes to use of medical free text data in research. International Population Data Linkage Network (IPDLN) 2016 Conference, Swansea, Wales, 24-26 August 2016. Published in: International Journal of Population Data Science. 1 (1) 229. Swansea University ISSN 2399-4908

Edited Book

Hazenberg, Evan and Meyerhoff, Miriam, eds. (2017) Representing trans: linguistic, legal and everyday perspectives. Victoria University Press, Wellington, New Zealand. ISBN 9781776561759

Thesis

Adamtey, Ronald (2012) Devolution and deconcentration in action: a comparative study of five Municipal Health Directorates in Ghana. Doctoral thesis (DPhil), University of Sussex.

Cheiladaki, Maria (2011) Supranational institutions, path dependence and EU policy development: the cases of student and patient mobility. Doctoral thesis (DPhil), University of Sussex.

Lee, Po-Han (2019) How is ‘nothing’ produced and justified? International inaction in the face of the health disparities of sexual and gender minorities. Doctoral thesis (PhD), University of Sussex.

Mwale, Shadreck (2015) Risk, rewards and regulation: exploring regulatory and ethical dimensions of human research participation in phase I (first-in-human) clinical trials in The United Kingdom. Doctoral thesis (PhD), University of Sussex.

Randhawa, Kirat (2014) Illness and healthcare experiences of recent low-income international migrants in a UK city. Doctoral thesis (PhD), University of Sussex.

Su, Yeyang (2019) Toolised medicine: an anthropological study of ‘experimental’ cell therapy during a period of regulatory change in China. Doctoral thesis (PhD), University of Sussex.

Other

Gillespie of Blackhall, Robert (2019) [Rapid response] Re: burnout in healthcare: the case for organisational change. British Medical Journal, United Kingdom.