Article

Gorman, Richard, Farsides, Bobbie and Gammidge, Tony (2022) Stop-motion storytelling: exploring methods for animating the worlds of rare genetic disease. Qualitative Research. ISSN 1468-7941

Koffman, Jonathan, Penfold, Clarissa, Cottrell, Laura, Farsides, Bobbie, Evans, Catherine J, Burman, Rachel, Nicholas, Richard, Ashford, Stephen and Silber, Eli (2022) “I wanna live and not think about the future” what place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study. PLoS ONE, 17 (5). pp. 1-27. ISSN 1932-6203

Gorman, Richard and Farsides, Bobbie (2022) Writing the worlds of genomic medicine: experiences of using participatory-writing to understand life with rare conditions. Med Humanit. pp. 1-12. ISSN 1468-215X

Scott, Hannah May, Coombes, Lucy, Braybrook, Debbie, Roach, Anna, Harðardóttir, Daney, Bristowe, Katherine, Ellis-Smith, Clare, Higginson, Irene, Gao, Wei, Bluebond-Langner, Myra, Farsides, Bobbie, Murtagh, Fliss E M, Frase, Lorna K and Harding, Richard (2022) COVID-19: impact on pediatric palliative care. Journal of Pain and Symptom Management. ISSN 0885-3924

Ferretti, Agata, Ienca, Marcello, Sheehan, Mark, Blasimme, Alessandro, Dove, Edward S, Farsides, Bobbie, Friesen, Phoebe, Kahn, Jeff, Karlen, Walter, Kleist, Peter, Liao, S Matthew, Nebeker, Camille, Samuel, Gabrielle, Shabani, Mahsa, Rivas Velarde, Minerva and Vayena, Effy (2021) Ethics review of big data research: what should stay and what should be reformed? BMC Medical Ethics, 22 (1). a51 1-13. ISSN 1472-6939

Jepkosgei, Joyline, Nzinga, Jacinta, Farsides, Bobbie, Marsh, Vicki, Molyneux, Sassy and McKnight, Jacob (2019) Maintaining distance and staying immersed: practical ethics in an underresourced new born unit. Journal of Empirical Research on Human Research Ethics. ISSN 1556-2646

Samuel, Gabrielle and Farsides, Bobbie (2018) Public trust and 'ethics review' as a commodity: the case of Genomics England Limited and the UK's 100,000 genomes project. Medicine, Health Care and Philosophy, 211 (2). pp. 159-168. ISSN 1386-7423

Samuel, Gabrielle Natalie and Farsides, Bobbie (2018) Genomics England’s implementation of its public engagement strategy: blurred boundaries between engagement for the UK’s 100,000 Genomes Project and the need for public support. Public Understanding of Science Journal, 27 (3). pp. 352-364. ISSN 0963-6625

Samuel, Gabrielle and Farsides, Bobbie (2017) The UK’s 100,000 Genomes Project: manifesting policymakers’ expectations. New Genetics and Society, 36 (4). pp. 336-353. ISSN 1463-6778

Samuel, Gabrielle, Dheesa, Sandi, Farsides, Bobbie, Fenwick, Angela and Lucassen, Anneke (2017) Healthcare professionals’ and patients’ perspectives on consent to clinical genetic testing: moving towards a more relational approach. BMC Medical Ethics, 18 (47). ISSN 1472-6939

Addissie, Adamu, Abay, Serebe, Feleke, Yeweyenhareg, Newport, Melanie, Farsides, Bobbie and Davey, Gail (2016) Cluster randomized trial assessing the effects of rapid ethical assessment on informed consent comprehension in a low-resource setting. BMC Medical Ethics, 17 (1). a40 1-12. ISSN 1472-6939

Sammons, H M, Wright, K, Young, B and Farsides, B (2016) Research with children and young people: not on them. Archives of Disease in Childhood, 101 (12). pp. 1086-1089. ISSN 0003-9888

Abay, Serebe, Addissie, Adamu, Davey, Gail, Farsides, Bobbie and Addissie, Thomas (2016) Rapid ethical assessment on informed consent content and procedure in Hintalo-Wajirat, Northern Ethiopia: a qualitative study. PLoS ONE, 11 (6). e0157056. ISSN 1932-6203

Morgan, M, Kenten, C, Deedat, S, Farsides, B, Newton, T, Randhawa, G, Sims, J and Sque, M (2016) Increasing the acceptability and rates of organ donation among minority ethnic groups: a programme of observational and evaluative research on Donation, Transplantation and Ethnicity (DonaTE). Programme Grants for Applied Research, 4 (4). pp. 1-196. ISSN 2050-4322

Wright, Katharine and Farsides, Bobbie (2016) [Letter to the editor] Children and clinical research: a response to Chwang. Bioethics, 30 (1). pp. 56-57. ISSN 0269-9702

Wright, Katharine, Collins, Seil and Farsides, Bobbie (2015) Why young people participate in clinical trials and the implications for research governance. American Journal of Bioethics, 15 (11). pp. 22-23. ISSN 1526-5161

Farsides, Bobbie (2015) What is good medical ethics? A very personal response to a difficult question. Journal of Medical Ethics, 41 (1). pp. 52-55. ISSN 0306-6800

Addissie, Adamu, Davey, Gail, Newport, Melanie, Farsides, Bobbie and Feleke, Yeweyenhareg (2015) Feasibility of rapid ethical assessment for the Ethiopian health research ethics review system. Ethiopian Medical Journal, 53 Sup. pp. 25-33. ISSN 0014-1755

Addissie, Adamu, Davey, Gail, Newport, Melanie J, Addissie, Thomas, Macgregor, Hayley, Feleke, Yeweyenhareg and Farsides, Bobbie (2014) A mixed-methods study on perceptions towards use of Rapid Ethical Assessment to improve informed consent processes for health research in a low-income setting. BMC Medical Ethics, 15. a35. ISSN 1472-6939

Eckstein, Susan and Farsides, Bobbie (2012) The Tuesday Group: a performance project on the Art of dying. LiNQ, 39. ISSN 0817-458X

Ehrich, K, Williams, C and Farsides, B (2012) Consenting futures: professional views on social, clinical and ethical aspects of information feedback to embryo donors in human embryonic stem cell research. Clinical Ethics, 5 (2). pp. 77-85. ISSN 1758-101X

Bull, S, Farsides, B and Tekola Ayele, F (2012) Tailoring information provision and consent processes to research contexts: the value of rapid assessments. Journal of Empirical Research on Human Research Ethics, 7 (1). pp. 37-52. ISSN 1556-2646

Farsides, Bobbie (2012) Respecting wishes and avoiding conflict: understanding the ethical basis for organ donation and retrieval. British Journal of Anaesthesia, 108 (S1). i73-i79. ISSN 1471-6771

Scott, R, WIlliams, C, Ehrich, K and Farsides, B (2012) Donation of 'spare' fresh or frozen embryos to research: who decides that an embryo is 'spare' and how can we enhance the quality and protect the validity of consent? Medical Law Review, 20 (3). pp. 255-303. ISSN 0967-0742

Farsides, Bobbie and Scott, R (2012) No small matter for some: practitioners' views on the moral status and treatment of human embryos. Medical Law Review, 20 (1). pp. 90-107. ISSN 0967-0742

Ehrich, Kathryn, Williams, Clare, Farsides, Bobbie and Scott, Rosamund (2011) Embryo futures and stem cell research: the management of informed uncertainty. Sociology of Health and Illness, 34 (1). pp. 114-129. ISSN 0141-9889

Kong, W M, Vernon, B, Boyd, K, Gillon, R, Farsides, B and Stirrat, G (2011) Include medical ethics in the Research Excellence Framework. BMJ, 343. d3968-d3968. ISSN 0959-8138

Ehrich, Kathryn, Farsides, Bobbie, Williams, Clare and Scott, Rosamund (2011) Constructing an ethical framework for embryo donation to research: Is it time for a restricted consent policy? Human Fertility, 14 (2). pp. 115-121. ISSN 1464-7273

Farsides, Bobbie (2010) Think before you click: setting personal boundaries for the acquisition of medical information. Clinical Ethics, 5 (4). p. 171. ISSN 1477-7509

Ehrich, Kathryn, Williams, Clare and Farsides, Bobbie (2010) Fresh or frozen? Classifying 'spare' embryos for donation to human embryonic stem cell research. Social Science and Medicine, 71 (12). pp. 2204-2211. ISSN 0277-9536

Tekola, Fasil, Bull, Susan, Farsides, Bobbie, Newport, Melanie J, Adeyemo, Adebowale, Rotimi, Charles N and Davey, Gail (2009) Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study. BMC Medical Ethics, 10 (13). ISSN 1472-6939

Tekola, Fasil, Bull, Susan J, Farsides, Bobbie, Newport, Melanie J, Adeyemo, Adebowale, Rotimi, Charles N and Davey, Gail (2009) Tailoring consent to context: designing an appropriate consent process for a biomedical study in a low income setting. PLoS Neglected Tropical Diseases, 3 (7). e482-e487. ISSN 1935-2735

Cribb, Alan, Wainwright, Steven, Williams, Clare, Farsides, Bobbie and Michael, Mike (2008) Towards the applied: the construction of ethical positions in stem cell translational research. Medicine, Health Care and Philosophy, 11 (3). pp. 351-361. ISSN 1386-7423

Ehrich, Kathryn, Williams, Clare and Farsides, Bobbie (2008) The embryo as moral work object: PGD/IVF staff views and experiences. Sociology of Health and Illness, 30 (5). pp. 772-787. ISSN 0141-9889

Scott, Rosamund, Williams, Clare, Ehrich, Kathryn and Farsides, Bobbie (2008) The appropriate extent of pre-implantation genetic diagnosis: health professionals' and scientists' views on the requirement for a 'significant risk of a serious genetic condition'. Medical Law Review, 15 (3). pp. 320-356. ISSN 0967-0742

Ehrich, Kathryn, Williams, Clare, Farsides, Bobbie, Sandall, Jane and Scott, Rosamund (2007) Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD. Sociology of Health and Illness, 29 (7). pp. 1091-1106. ISSN 0141-9889

Book Section

Farsides, Bobbie (2016) The informational needs of prospective parents: an ethical perspective. In: Golombok, Susan, Appleby, John B, Richards, Martin, Scott, Rosamund and Wilkinson, Stephen (eds.) Regulating reproductive donation. Cambridge University Press, Cambridge, pp. 352-372. ISBN 9781107090965

Farsides, Bobbie (2011) Negotiating change: organ donation in the United Kingdom. In: Farrell, A, Price, D and Quigley, M (eds.) Organ shortage: ethics, law and pragmatism. Cambridge law, medicine and ethics (13). Cambridge University Press, Cambridge, pp. 215-226. ISBN 9780521198998

Farsides, Bobbie (2010) The ethical importance of boundaries to intimacy. In: Subotsky, F, Bewley, S and Crowe, M (eds.) Abuse of the doctor-patient relationship. RCPsych Publications, London, pp. 7-14. ISBN 9781904671374