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From Subject to Fellow Researcher - 23.07.20 Accepted VERSION.pdf (226.22 kB)

From subject to fellow researcher: reconceptualising research relationships to safeguard potentially vulnerable survey participants

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journal contribution
posted on 2023-06-07, 07:45 authored by Peter West-OramPeter West-Oram, Caroline Brooks, Valerie JenkinsValerie Jenkins
In this open peer commentary, we suggest that the dilemma encountered by Levinson et al. arises as a consequence of conceptual and practical decisions, which collectively, inappropriately dilute authority and accountability for survey data. We argue that it ma y be possible to reduce the ethical dilemmas encountered by Levinson et al., (2020) if not eliminate them entirely, by reconceptualising the inherent value of survey participants, their status and role in research. We suggest that when designing surveys, researchers should frame potential respondents as active collaborators and contributors of data, rather than merely as passive “subjects”. This shift in positioning delivers a conceptual foundation to proactively establish norms and expectations which respect participant privacy and anonymity, while safeguarding public safety.

History

Publication status

  • Published

File Version

  • Accepted version

Journal

American Journal of Bioethics

ISSN

1526-5161

Publisher

Taylor & Francis

Issue

10

Volume

20

Page range

72-74

Department affiliated with

  • Clinical and Experimental Medicine Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2020-08-20

First Open Access (FOA) Date

2021-09-19

First Compliant Deposit (FCD) Date

2020-08-19

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