Perceptions and experiences of dementia and its care in rural Kenya

Musyimi, Christine W, Ndetei, David M, Evans-Lacko, Sara, Oliveira, Déborah, Mutunga, Elizabeth and Farina, Nicolas (2021) Perceptions and experiences of dementia and its care in rural Kenya. Dementia. ISSN 1471-3012

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Abstract

Objectives
We aimed to explore the perceptions towards dementia and related care across three stakeholder groups in rural Kenya.

Methods
A total of 38 key stakeholders (carers of persons with dementia, health care providers and the general public) participated in focus group discussions. Additional five individual interviews were held with carers. Thematic analysis was used to analyse the data.

Findings
Across the three participant groups, a total of four themes were identified: (i) negative stereotypes of dementia, (ii) limited knowledge about dementia, (iii) diagnostic pathway and (iv) neglect and abuse.

Conclusions
We found a general lack of knowledge of dementia amongst family carers, healthcare professionals and the general public. The combination of poor awareness and ill-equipped healthcare systems leads to stigma manifested in the form of patchy diagnostic pathways, neglect and abuse. Local governments could take advantage of the existing family- and community-based systems to improve understanding of dementia nationally.

Item Type: Article
Schools and Departments: Brighton and Sussex Medical School > Neuroscience
SWORD Depositor: Mx Elements Account
Depositing User: Mx Elements Account
Date Deposited: 13 Apr 2021 07:27
Last Modified: 13 May 2021 13:45
URI: http://sro.sussex.ac.uk/id/eprint/98409

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