University of Sussex
Browse
Kenya WP3 (2021) - Dementia [STRiDE].pdf (978.75 kB)

Perceptions and experiences of dementia and its care in rural Kenya

Download (978.75 kB)
journal contribution
posted on 2023-06-09, 23:34 authored by Christine W Musyimi, David M Ndetei, Sara Evans-Lacko, Déborah Oliveira, Elizabeth Mutunga, Nicolas Farina
Objectives We aimed to explore the perceptions towards dementia and related care across three stakeholder groups in rural Kenya. Methods A total of 38 key stakeholders (carers of persons with dementia, health care providers and the general public) participated in focus group discussions. Additional five individual interviews were held with carers. Thematic analysis was used to analyse the data. Findings Across the three participant groups, a total of four themes were identified: (i) negative stereotypes of dementia, (ii) limited knowledge about dementia, (iii) diagnostic pathway and (iv) neglect and abuse. Conclusions We found a general lack of knowledge of dementia amongst family carers, healthcare professionals and the general public. The combination of poor awareness and ill-equipped healthcare systems leads to stigma manifested in the form of patchy diagnostic pathways, neglect and abuse. Local governments could take advantage of the existing family- and community-based systems to improve understanding of dementia nationally.

History

Publication status

  • Published

File Version

  • Accepted version

Journal

Dementia

ISSN

1471-3012

Publisher

SAGE Publications

Department affiliated with

  • BSMS Neuroscience Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2021-04-13

First Open Access (FOA) Date

2021-04-13

First Compliant Deposit (FCD) Date

2021-04-12

Usage metrics

    University of Sussex (Publications)

    Categories

    No categories selected

    Exports

    RefWorks
    BibTeX
    Ref. manager
    Endnote
    DataCite
    NLM
    DC