Dementia awareness, beliefs and barriers among family caregivers in Pakistan

Balouch, Sara, Zaidi, Asghar, Farina, Nicolas and Willis, Rosalind (2021) Dementia awareness, beliefs and barriers among family caregivers in Pakistan. Dementia, 20 (3). pp. 899-918. ISSN 1471-3012

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OBJECTIVES: Dementia research and services in Pakistan are limited. The following was explored in experiences of family caregivers of people with dementia in Pakistan: a) to determine whether culture and religion play a role in caregiving; b) to draw insights on how family caregivers cope, what barriers they face, and what help they would be willing to accept; and c) to determine how these
findings could be used to raise awareness and influence public policies in improving the lives of families
living with dementia.

METHODS: The experiences of family caregivers of people with dementia in Pakistan were explored via semi-structured interviews (10 in Lahore; 10 in Karachi). This was part of a larger qualitative study conducted about dementia in Pakistan. Caregivers interviewed were aged 35-80 (14 female). Most caregivers in the study were educated and affluent. Interviews were conducted in Urdu,
translated into English and thematically analysed.

RESULTS: Five themes emerged: Knowledge & Awareness; Stigma; Importance of Religion and Duty to Care; Use of Day Care Centres and Home-help; and Barriers. A lack of dementia awareness exists in Pakistan. The religious duty to care for family influenced caregiving decisions. Day care centres and home-help were accessed and viewed positively. The caregivers also wanted extracurricular
activities for people with dementia, support groups for caregivers, and better training for healthcare staff.
Novel findings included that caregivers felt that dementia should not be stigmatized, and awareness should be raised in Pakistan via TV, radio and social media, but not inside mosques.

DISCUSSION: Additional research is necessary to determine if positive views of day care centres and home-help exist more widely. Attitudes and experiences regarding stigma may be different for caregivers of people with more advanced dementia. We recommend raising dementia awareness, allocating more funds to dementia services, and an emphasis on home-based care.

Item Type: Article
Schools and Departments: Brighton and Sussex Medical School > Neuroscience
SWORD Depositor: Mx Elements Account
Depositing User: Mx Elements Account
Date Deposited: 05 Mar 2020 14:40
Last Modified: 21 Feb 2022 13:30

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Project NameSussex Project NumberFunderFunder Ref
Understanding, Beliefs and Treatment of Dementia in PakistanG2259AGE UK517010101