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“DLQI seems to be ‘action’, and Skindex-29 seems to be ‘emotion’”: qualitative study of the perceptions of patients with psoriasis or eczema on two common dermatology-specific quality of life measures
journal contribution
posted on 2023-06-09, 20:38 authored by Priyamvada Paudyal, Christian Apfelbacher, Christina Jones, Sanna Siddiqui, Aisha El-Turki, Claudia DeGiovanni, Helen SmithLittle is known about which quality of life (QoL) measure best captures the lived experience of people with a chronic skin condition. The purpose of this study was to explore patients’ views on the Dermatology Life Quality Index (DLQI) and Skindex-29. Participants were adults (n=28) with a diagnosis of eczema or psoriasis who completed the DLQI and the Skindex-29 before being interviewed about the content and format of these questionnaires. Interviews were analysed using content analysis. Participants were generally satisfied with length and layout of both questionnaires. However, the majority preferred the Skindex-29 for its ease of understanding, use of a longer recall period and incorporation of items on a variety of emotions. Participants reported both questionnaires failing to incorporate important aspects of their lives, for instance impact on professional relationships. Participants voiced limitations in both measures but overall felt Skindex-29 better captured their lived experience.
History
Publication status
- Published
File Version
- Accepted version
Journal
Acta Dermato-VenereologicaISSN
0001-5555Publisher
Society for Publication of Acta Dermato-VenereologicaExternal DOI
Department affiliated with
- Primary Care and Public Health Publications
Full text available
- No
Peer reviewed?
- Yes
Legacy Posted Date
2020-02-18First Compliant Deposit (FCD) Date
2020-02-17Usage metrics
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