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Use and costs of services and unpaid care for people with mild-to-moderate dementia: baseline results from the IDEAL cohort study
Version 2 2023-06-12, 09:17
Version 1 2023-06-09, 20:03
journal contribution
posted on 2023-06-12, 09:17 authored by Catherine Henderson, Martin Knapp, Sharon M Nelis, Catherine Quinn, Anthony Martyr, Yu-Tzu Wu, Ian R Jones, Christina R Victor, James A Pickett, John V Hindle, Roy W Jones, Michael D Kopelman, Fiona E Matthews, Robin G Morris, Jennifer Rusted, IDEAL Programme Team, othersIntroduction We examined 3-month service use and costs of care for people with mild-to-moderate dementia in Great Britain. Methods We analyzed Improving the experience of Dementia and Enhancing Active Life cohort study baseline data on paid care, out-of-pocket expenditure, and unpaid care from participants with dementia (N = 1547) and their carers (N = 1283). In regression analyses, we estimated per-group mean costs of diagnostic and sociodemographic subgroups. Results Use of services apart from primary and outpatient hospital care was low. Unpaid care accounted for three-quarters of total costs (mean, £4008 [standard error, £130] per participant). Most participants (87%) received unpaid care equating to 36 hours weekly. Estimated costs for people with Parkinson's dementia were £8609, £4359 for participants with mixed dementia, and £3484 for those with Alzheimer's disease. Total costs were lower for participants with dementia living alone than living with others (£2484 vs. £4360); costs were lower for female than for male participants (£3607 vs. £4272). Discussion Costs varied by dementia subtype, carer status, and living arrangement. Policy makers should recognize the high costs of unpaid care for people with dementia, who do not always get the support that they need or would like to receive.
History
Publication status
- Published
File Version
- Published version
Journal
Alzheimer’s & Dementia: Translational Research & Clinical InterventionsISSN
2352-8737Publisher
ElsevierExternal DOI
Issue
1Volume
5Page range
685-696Department affiliated with
- Psychology Publications
Full text available
- No
Peer reviewed?
- Yes
Legacy Posted Date
2020-01-03First Open Access (FOA) Date
2020-01-03First Compliant Deposit (FCD) Date
2020-01-02Usage metrics
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