A roadmap to develop dementia research capacity and capability in Pakistan: a model for low- and middle-income countries

Leroi, Iracema, Chaudhry, Nasim, Daniel, Anna, Dunne, Ross, Eman, Saima, Farina, Nicolas, Haidry, Sana-e-Zehra, Husain, Nusrat, Jafri, Hussain, Karim, Salman, Kiran, Tayyeba, Khan, Murad, Khan, Quratulain, Malik, Shakil Jehangir, Memon, Rakhshi, PDRSG, and others, (2019) A roadmap to develop dementia research capacity and capability in Pakistan: a model for low- and middle-income countries. Alzheimer’s & Dementia: Translational Research & Clinical Interventions, 5. pp. 939-952. ISSN 2352-8737

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Abstract

Objective
To produce a strategic roadmap for supporting the development of dementia research in Pakistan.

Background
While global research strategies for dementia research already exist, none is tailored to the specific needs and challenges of low- and middle-income countries (LMIC) like Pakistan.

Methods
We undertook an iterative consensus process with lay and professional experts to develop a Theory of Change-based strategy for dementia research in Pakistan. This included Expert Reference Groups (ERGs), strategic planning techniques, a “research question” priority survey, and consultations with Key Opinion Leaders.

Results
We agreed on ten principles to guide dementia research in Pakistan, emphasizing pragmatic, resource sparing, real-world approaches to support people with dementia, both locally and internationally. Goals included capacity/capability building. Priority research topics included raising awareness and understanding of dementia, and improving quality of life.

Conclusion
This roadmap may be a model for other LMIC health ecosystems with emerging dementia research cultures.

Item Type: Article
Schools and Departments: Brighton and Sussex Medical School > Neuroscience
Subjects: R Medicine
R Medicine > RA Public aspects of medicine
Depositing User: Nicolas Farina
Date Deposited: 03 Jan 2020 08:02
Last Modified: 03 Jan 2020 08:15
URI: http://sro.sussex.ac.uk/id/eprint/89000

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