State of the Art Paper 2019.pdf (274.74 kB)
Current state of quality of life and patient-reported outcomes research
conference contribution
posted on 2023-06-09, 19:26 authored by A Bottomley, Jaap C Reijneveld, Michael Koller, Henning Flechtner, Krzysztof A Tomaszewski, Eva Greimel, Lesley FallowfieldLesley FallowfieldThe 5th EORTC Quality of Life in Cancer Clinical Trials Conference presented the current state of quality of life and other patient-reported outcomes (PROs) research from the perspectives of researchers, regulators, industry representatives, patients and patient advocates and health care professionals. A major theme was the assessment of the burden of cancer treatments, and this was discussed in terms of regulatory challenges in using PRO assessments in clinical trials, patients' experiences in cancer clinical trials, innovative methods and standardisation in cancer research, innovative methods across the disease sites or populations and cancer survivorship. Conferees demonstrated that PROs are becoming more accepted and major efforts are ongoing internationally to standardise PROs measurement, analysis and reporting in trials. Regulators are keen to collaborate with all stakeholders to ensure that the right questions are asked and the right answers are communicated. Improved technology and increased flexibility of measurement instruments are making PROs data more robust. Patients are being encouraged to be patient partners. International collaborations are essential, because this work cannot be accomplished on a national level.
History
Publication status
- Published
File Version
- Published version
Journal
European Journal of CancerISSN
1879-0852Publisher
ElsevierExternal DOI
Volume
121Page range
55-63Event name
5th EORTC Quality of Life in Cancer Clinical Trials ConferenceEvent type
conferenceDepartment affiliated with
- Sussex Health Outcomes Research & Education in Cancer (SHORE-C) Publications
Notes
Article attributed to Bottomley, Reijneveld, Koller, Flechtner, Tomaszewski and Greimel on behalf of the 5th EORTC Quality of Life in Cancer Clinical Trials Conference Faculty, of which Dame Lesley Fallowfield is a member.Full text available
- Yes
Peer reviewed?
- Yes
Legacy Posted Date
2019-10-30First Open Access (FOA) Date
2019-10-30First Compliant Deposit (FCD) Date
2019-10-23Usage metrics
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