Current state of quality of life and patient-reported outcomes research

Bottomley, A, Reijneveld, Jaap C, Koller, Michael, Flechtner, Henning, Tomaszewski, Krzysztof A, Greimel, Eva and Fallowfield, Lesley (2019) Current state of quality of life and patient-reported outcomes research. 5th EORTC Quality of Life in Cancer Clinical Trials Conference. Published in: European Journal of Cancer. 121 55-63. Elsevier ISSN 1879-0852

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Abstract

The 5th EORTC Quality of Life in Cancer Clinical Trials Conference presented the current state of quality of life and other patient-reported outcomes (PROs) research from the perspectives of researchers, regulators, industry representatives, patients and patient advocates and health care professionals. A major theme was the assessment of the burden of cancer treatments, and this was discussed in terms of regulatory challenges in using PRO assessments in clinical trials, patients' experiences in cancer clinical trials, innovative methods and standardisation in cancer research, innovative methods across the disease sites or populations and cancer survivorship. Conferees demonstrated that PROs are becoming more accepted and major efforts are ongoing internationally to standardise PROs measurement, analysis and reporting in trials. Regulators are keen to collaborate with all stakeholders to ensure that the right questions are asked and the right answers are communicated. Improved technology and increased flexibility of measurement instruments are making PROs data more robust. Patients are being encouraged to be patient partners. International collaborations are essential, because this work cannot be accomplished on a national level.

Item Type: Conference Proceedings
Additional Information: Article attributed to Bottomley, Reijneveld, Koller, Flechtner, Tomaszewski and Greimel on behalf of the 5th EORTC Quality of Life in Cancer Clinical Trials Conference Faculty, of which Dame Lesley Fallowfield is a member.
Keywords: Cancer patients, Cancer survivorship, Cancer treatment Patient-reported outcomes, Quality of life, Symptom assessments
Schools and Departments: Brighton and Sussex Medical School > Sussex Health Outcomes Research & Education in Cancer (SHORE-C)
Subjects: R Medicine > RC Internal medicine > RC0254 Neoplasms. Tumors. Oncology Including cancer and carcinogens > RC0261 Cancer and other malignant neoplasms
R Medicine > RC Internal medicine > RC0254 Neoplasms. Tumors. Oncology Including cancer and carcinogens > RC0261 Cancer and other malignant neoplasms > RC0267 Research. Experimentation
Depositing User: Kathryn Monson
Date Deposited: 30 Oct 2019 17:23
Last Modified: 30 Oct 2019 17:23
URI: http://sro.sussex.ac.uk/id/eprint/87472

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