University of Sussex
Browse
Rosemann_et_al-2019-Hastings_Center_Report.pdf (331.67 kB)

Heritable human gene editing in global context: national and international policy challenges

Download (331.67 kB)
Version 2 2023-06-12, 09:09
Version 1 2023-06-09, 18:13
journal contribution
posted on 2023-06-12, 09:09 authored by Achim Rosemann, Adam Balen, Brigitte Nerlich, Christine Hauskeller, Margaret Sleeboom-FaulknerMargaret Sleeboom-Faulkner, Sarah Hartley, Xinqing Zhang, Nick Lee
A central problem for the international governance of heritable germline gene editing is that there are important differences in attitudes and values as well as ethical and health care considerations around the world. These differences are reflected in a complicated and diverse regulatory landscape. Several publications have discussed whether reproductive uses would be legally permissible in individual countries and whether clinical applications could emerge in the context of regulatory gaps and gray areas. Systematic comparative studies that explore issues related to the governance of this technology from different national and international perspectives are needed to address the lack of knowledge in this area. In this research report, we contribute to filling this gap by presenting views of stakeholders in the United Kingdom on challenges to the governance of heritable genome editing. We present findings from a multistakeholder study conducted in the United Kingdom between October 2016 and January 2018 and funded by the Wellcome Trust. This research included interviews, literature analysis, and a workshop. We involved leading U.K. scientists, in vitro fertilization clinicians, and representatives from regulatory bodies, patient organizations, and other civil societal organizations, as well as fertility companies. Part one of this article explores stakeholder perceptions of possible global developments in heritable genome editing and associated risks and governance challenges. Part two presents a range of policy options that were generated during the workshop in relation to the challenges discussed in part one.

History

Publication status

  • Published

File Version

  • Published version

Journal

Hastings Center Report

ISSN

1552-146X

Publisher

Wiley

Issue

3

Volume

49

Page range

30-41

Department affiliated with

  • Anthropology Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2019-06-25

First Open Access (FOA) Date

2019-08-08

First Compliant Deposit (FCD) Date

2019-06-24

Usage metrics

    University of Sussex (Publications)

    Categories

    No categories selected

    Licence

    Exports

    RefWorks
    BibTeX
    Ref. manager
    Endnote
    DataCite
    NLM
    DC