Social capital components and social support of persons with multiple sclerosis: a systematic review of the literature from 2000 to 2018

Koutsogeorgou, Eleni, Chiesi, Antonio M and Leonardi, Matilde (2019) Social capital components and social support of persons with multiple sclerosis: a systematic review of the literature from 2000 to 2018. Disability and Rehabilitation. pp. 1-13. ISSN 0963-8288

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Abstract

Purpose: To identify experiences of persons with multiple sclerosis (MS) in terms of social capital and its components (i.e., social networks, trust, and interpersonal relationships) and social support based on the current scientific knowledge.

Methods: Systematic literature review was conducted through PubMed, Scopus, Web of Science, ProQuest, and PsycINFO. Included articles were published from 2000 to 2018 and met specific selection criteria. Screening of records determined eligible studies for inclusion to data extraction and synthesis process.

Results: A total of 551 abstracts were screened, of which 34 studies met all selection criteria. The themes that emerged referred to the impact of physical and cognitive impairments on social functioning, stigma, psychosocial, emotional and mental challenges, association of quality of life with social capital components and social support, and contribution of social support to improvement of social functioning and health of persons with MS. Persons with MS face a series of issues regarding social support and social capital-related components, primarily facing psychological difficulties, difficulties with making and maintaining interpersonal relationships, and limitations for participating in social and daily activities due to the symptoms of MS, particularly fatigue.

Conclusion: It appears that the ability to seek and maintain social relationships and to participate in social and daily activities is important for persons with MS. This has an impact on their quality of life, as well as on their health functioning, however issues around mobility and stigmatization of their condition hinder their social functioning.

Item Type: Article
Keywords: Social capital, social networks, social support, multiple sclerosis, review literature
Schools and Departments: School of Law, Politics and Sociology > Sociology
Subjects: H Social Sciences > HM Sociology
H Social Sciences > HM Sociology > HM0708 Social capital
R Medicine > RA Public aspects of medicine > RA0001 Medicine and the state. Including medical statistics, medical economics, provisions for medical care, medical sociology > RA0418 Medicine and society. Social medicine. Medical sociology
R Medicine > RA Public aspects of medicine > RA0418 Medicine and society. Social medicine. Medical sociology
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Depositing User: Eleni Koutsogeorgou
Date Deposited: 30 Apr 2019 09:45
Last Modified: 01 Jul 2019 15:46
URI: http://sro.sussex.ac.uk/id/eprint/83460

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