Catt, Sussan L., Anderson, J.L., Chalmers, A.J. and Fallowfield, L.J (2011) A UK-wide survey of follow-up practices for patients with high-grade glioma treated with radical intent. Journal of Evaluation In Clinical Practice, 17 (1). pp. 1-6. ISSN 1356-1294

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Abstract

High-grade glioma profoundly affects patients and their families. The best ongoing care for patients completing radical treatment is uncertain. To address this issue a UK-wide audit surveying the follow-up practices of multidisciplinary cancer teams was conducted.
An online survey package was used with a paper version available.
Of 102 clinicians approached 86 replied, a response rate of 84%. Three-monthly outpatient department appointments led by an oncologist and a specialist nurse were the norm, but more controversially, some centres conduct joint clinics with the whole neurosurgical/oncology team present or available. Nurse-led telephone follow-up in place of hospital visits is uncommon. Regular scanning is conducted despite the clinical benefits being contentious. Access to a range of allied services providing supportive care is considered, but the actual levels of need and the efficiency with which they are delivered require further investigation.
The picture of UK follow-up practices revealed by this survey demonstrates that research is now needed to determine what preferences patients and families have for follow-up and their satisfaction with these.

Item Type:	Article
Additional Information:	Accepted for publication 13 May 2009 and e-published in 8th December 2010 ahead of print version in 2011
Keywords:	brain tumours follow-up high-grade glioma service delivery supportive care
Schools and Departments:	Brighton and Sussex Medical School > Sussex Health Outcomes Research & Education in Cancer (SHORE-C)
Subjects:	R Medicine > R Medicine (General) R Medicine > RC Internal medicine > RC0254 Neoplasms. Tumors. Oncology Including cancer and carcinogens R Medicine > RD Surgery > RD0651 Neoplasms. Tumors. Oncology
Depositing User:	Tracy Woodcock
Date Deposited:	25 Aug 2011 12:46
Last Modified:	30 Nov 2012 16:55
URI:	http://sro.sussex.ac.uk/id/eprint/7118
Google Scholar:	2 Citations

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