Quality of survival: a new concept framework to assess the quality of prolonged life in cancer

Fallowfield, Lesley, Nadler, E, Gilloteau, I, Greaney, M, Gater, A, Orsini, L, Subar, M and Lyman, G H (2017) Quality of survival: a new concept framework to assess the quality of prolonged life in cancer. Expert Review of Quality of Life in Cancer Care, 2 (4). pp. 225-232. ISSN 2380-9000

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Background: Improved cancer care means that more patients are surviving longer, but there is a need to examine how well patients survive. We conducted an exploratory analysis of a new conceptual framework termed ‘quality of survival’ (QoS) that delineates the quality of patients’ experience.
Methods: This project included an electronic database search to investigate the survivorship landscape and to create a visual QoS map and semi-structured interviews with patients (n = 35), clinicians (n = 40), and payers (n = 7) to support the QoS map. QoS was discussed in the context of two tumor types, metastatic non-small cell lung cancer and metastatic melanoma.
Results: Despite increased long-term survival, no specific definition of QoS exists. Patients reported many impacts that affect QoS, clinicians viewed QoS as relevant to treatment decisions, and payers felt it could help communicate different aspects relevant to the patient. Four interconnected QoS dimensions were developed (quality of life, survival, side effects, and economic impact), which vary in importance along the care continuum.
Conclusion: QoS is a patient-centric concept that could help decision-making and patient communication. The QoS map could provide a framework to monitor patient experience and help patients frame what treatment attribute is most important to them at any point in the cancer continuum.

Item Type: Article
Keywords: Melanoma, non-small cell lung cancer, quality of life, survival, quality of survival
Schools and Departments: Brighton and Sussex Medical School > Sussex Health Outcomes Research & Education in Cancer (SHORE-C)
Subjects: R Medicine > R Medicine (General) > R852 Research. Experimentation
R Medicine > RC Internal medicine
R Medicine > RC Internal medicine > RC0254 Neoplasms. Tumors. Oncology Including cancer and carcinogens
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Depositing User: Kathryn Monson
Date Deposited: 14 Sep 2017 14:55
Last Modified: 17 May 2021 14:52
URI: http://sro.sussex.ac.uk/id/eprint/70202

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