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Biogovernance beyond the state: the shaping of stem cell therapy by patient organizations in India

journal contribution
posted on 2023-06-09, 04:58 authored by Carolyn Heitmeyer
Public engagement through government-sponsored "public consultations" in biomedical innovation, specifically stem cell research and therapy, has been relatively limited in India. However, patient groups are drawing upon collaborations with medical practitioners to gain leverage in promoting biomedical research and the conditions under which patients can access experimental treatments. Based on qualitative fieldwork conducted between 2012 and 2015, I examine the ways in which two patient groups engaged with debates around how experimental stem cell therapy should be regulated, given the current lack of legally binding research guidelines. Such processes of engagement can be seen as an alternative form of biomedical governance which responds to the priorities and exigencies of Indian patients, contrasting with the current measures taken by the Indian state which, instead, are primarily directed at the global scientific and corporate world.

Funding

Bionetworking in Asia - International collaboration, exchange, and responsible innovation in the life sciences; G0750; ESRC-ECONOMIC & SOCIAL RESEARCH COUNCIL; ES/I018107/1

History

Publication status

  • Published

File Version

  • Accepted version

Journal

Medical Anthropology

ISSN

0145-9740

Publisher

Taylor & Francis

Issue

3

Volume

36

Page range

202-216

Department affiliated with

  • Anthropology Publications

Full text available

  • No

Peer reviewed?

  • Yes

Legacy Posted Date

2017-01-30

First Compliant Deposit (FCD) Date

2017-01-30

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