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Biogovernance beyond the state: the shaping of stem cell therapy by patient organizations in India
journal contribution
posted on 2023-06-09, 04:58 authored by Carolyn HeitmeyerPublic engagement through government-sponsored "public consultations" in biomedical innovation, specifically stem cell research and therapy, has been relatively limited in India. However, patient groups are drawing upon collaborations with medical practitioners to gain leverage in promoting biomedical research and the conditions under which patients can access experimental treatments. Based on qualitative fieldwork conducted between 2012 and 2015, I examine the ways in which two patient groups engaged with debates around how experimental stem cell therapy should be regulated, given the current lack of legally binding research guidelines. Such processes of engagement can be seen as an alternative form of biomedical governance which responds to the priorities and exigencies of Indian patients, contrasting with the current measures taken by the Indian state which, instead, are primarily directed at the global scientific and corporate world.
Funding
Bionetworking in Asia - International collaboration, exchange, and responsible innovation in the life sciences; G0750; ESRC-ECONOMIC & SOCIAL RESEARCH COUNCIL; ES/I018107/1
History
Publication status
- Published
File Version
- Accepted version
Journal
Medical AnthropologyISSN
0145-9740Publisher
Taylor & FrancisExternal DOI
Issue
3Volume
36Page range
202-216Department affiliated with
- Anthropology Publications
Full text available
- No
Peer reviewed?
- Yes
Legacy Posted Date
2017-01-30First Compliant Deposit (FCD) Date
2017-01-30Usage metrics
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