Peer support for parents of children with chronic disabling conditions: a systematic review of quantitative and qualitative studies

Shilling, Valerie, Morris, Christopher, Thompson-Coon, Jo, Ukoumunne, Obioha, Rogers, Morwenna and Logan, Stuart (2013) Peer support for parents of children with chronic disabling conditions: a systematic review of quantitative and qualitative studies. Developmental Medicine & Child Neurology, 55 (7). pp. 602-609. ISSN 0012-1622

[img] PDF - Accepted Version
Download (512kB)


AIM: To review the qualitative and quantitative evidence of the benefits of peer support for parents of children with disabling conditions in the context of health, well-being, impact on family, and economic and service implications. Method: We comprehensively searched multiple databases. Eligible studies evaluated parent-to-parent support and reported on the psychological health and experience of giving or receiving support. There were no limits on the child's condition, study design, language, date, or setting. We sought to aggregate quantitative data; findings of qualitative studies were combined using thematic analysis. Qualitative and quantitative data were brought together in a narrative synthesis. Results: Seventeen papers were included: nine qualitative studies, seven quantitative studies, and one mixed-methods evaluation. Four themes were identified from qualitative studies: (1) shared social identity, (2) learning from the experiences of others, (3) personal growth, and (4) supporting others. Some quantitative studies reported a positive effect of peer support on psychological health and other outcomes; however, this was not consistently confirmed. It was not possible to aggregate data across studies. No costing data were identified. Conclusion: Qualitative studies strongly suggest that parents perceive benefit from peer support programmes, an effect seen across different types of support and conditions. However, quantitative studies provide inconsistent evidence of positive effects. Further research should explore whether this dissonance is substantive or an artefact of how outcomes have been measured. © The Authors © 2013 Mac Keith Press.

Item Type: Article
Keywords: childhood disease disability experience family human language learning mental health parent peer group pilot study priority journal qualitative research quantitative study review social status systematic review thematic analysis wellbeing adult child disabled person psychological aspect social support Disabled Persons Humans Parents
Schools and Departments: Brighton and Sussex Medical School > Sussex Health Outcomes Research & Education in Cancer (SHORE-C)
Research Centres and Groups: Sussex Health Outcomes Research and Education in Cancer
Subjects: R Medicine > RJ Pediatrics > RJ0101 Child health. Child health services
Depositing User: Valerie Shilling
Date Deposited: 27 Sep 2016 13:29
Last Modified: 31 Oct 2019 10:51

View download statistics for this item

📧 Request an update