AC - Hurzuk et al., (2022) - Dementia [STRiDE].pdf (387.91 kB)
Understanding, experiences and attitudes of dementia in India: a qualitative study
journal contribution
posted on 2023-06-10, 05:01 authored by Saadiya Hurzuk, Nicolas Farina, Meera Pattabiraman, Narendhar Ramasamy, Suvarna Alladi, Jayeeta Rajagopalan, Adelina Comas-Herrera, Priya T Thomas, Sara Evans-LackoIndia is the world’s second-most populous country and there are about 5.3 million people with dementia in India. Only one out of ten people living with dementia in India ever gets a diagnosis, care or treatment. There are various obstacles to deliver dementia care and support to people living with dementia and their carers. Furthermore, there is inadequate understanding of dementia in the general public and within the health care professionals. Studies in India indicate that people with dementia experience stigmatisation in society as well as neglect from their families. Social prejudice associated with dementia makes it a challenging experience, in addition, it makes the persons with dementia and carers feel isolated and stigmatised. Focus groups and individual interviews were used to explore perceptions, beliefs and experiences of dementia across a number of stakeholders in India, with an effort to understand stigma towards people with dementia. Participants were recruited in two diverse cities of India (Chennai and Delhi), and were comprised of a range of key stakeholders, including persons with dementia (n = 8), caregivers (n = 19), health care professionals (n = 16) and the general public (n = 15). Following a thematic analysis, we identified three overachieving themes; (1) Poor awareness, (2) Stigma and (3) Barriers to accessing care. These all occurred within the context of socio-cultural beliefs. Whilst each stakeholder group had different experiences of dementia, it was common for all participant groups to use stigmatising language associated with dementia. In many cases, stigmatising beliefs and poor understanding of dementia resulted in poor care. There is an apparent need to raise awareness of dementia in India across all stakeholder groups; the fact that participants were able to self-identify that they had a lacked awareness of the condition may indicate that these groups are receptive to learning more about dementia.
History
Publication status
- Published
File Version
- Accepted version
Journal
DementiaISSN
1471-3012Publisher
SAGE PublicationsExternal DOI
Issue
7Volume
21Page range
2288-2306Event location
EnglandDepartment affiliated with
- BSMS Neuroscience Publications
Full text available
- Yes
Peer reviewed?
- Yes
Legacy Posted Date
2022-10-06First Open Access (FOA) Date
2022-10-06First Compliant Deposit (FCD) Date
2022-10-05Usage metrics
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