Autistic perspectives on the future of clinical autism research

Pukki, Heta, Bettin, Jorn, Outlaw, Avery Grey, Hennessy, Joshua, Brook, Kabie, Dekker, Martijn, Doherty, Mary, Shaw, Sebastian C K, Bervoets, Jo, Rudolph, Silke, Corneloup, Thibault, Derwent, Kylieanne, Lee, Onemoo, Garcia Rojas, Yadira, Lawson, Wenn and others, (2022) Autistic perspectives on the future of clinical autism research. Autism in Adulthood, 4 (2). pp. 93-101. ISSN 2573-9581

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The Lancet Commission on the Future of Care and Clinical Research in Autism recently published their recommendations for what should be done in the next 5 years to address the current needs of autistic individuals and families. Although the Commission includes many prominent clinicians and researchers from around the world, as well as some autistic advocates and parents of autistic people, there have been widespread expressions of dissatisfaction among autistic people and communities regarding these recommendations.

We, the Global Autistic Task Force on Autism Research are a group of autistic professionals and representatives of organizations run by and for autistic people. We are autistic clinicians, therapists, educators and researchers, parents, and family members of autistic people of all ages and with all types of support needs, as well as individuals with high support needs. Among us are also autistic people of color, autistic people from the Global South and Asia, autistic women, and autistic people belonging to gender minorities.

Despite aiming at bringing together different stakeholders, representation within the Lancet Commission was limited in these respects. We hope to bring more voices to the discourse. We previously wrote an open letter to the Commission to draw attention to our main concerns. In this editorial, we offer a more detailed discussion of the Commission's report, as well as our own recommendations for future directions in autism research and care.

Item Type: Article
Keywords: Autism, Autistic, Research priorities, Participatory research, Healthcare, Clinical
Schools and Departments: Brighton and Sussex Medical School > Division of Medical Education
SWORD Depositor: Mx Elements Account
Depositing User: Mx Elements Account
Date Deposited: 13 Jun 2022 09:43
Last Modified: 13 Jun 2022 09:45

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