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Understanding public priorities and perceptions of the use of linked healthcare data in South East England

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posted on 2023-06-10, 03:49 authored by Elizabeth FordElizabeth Ford, Kathryn Stanley, Melanie Rees-Roberts, Sarah Giles, Katie Goddard, Jo Armes
The counties of Kent, Surrey and Sussex (KSS) in South East England are creating anonymized, linked databases of healthcare records for audit, service planning and research for the first time. We consulted with 79 citizens from KSS in 5 deliberative focus groups, asking about perceived benefits and concerns regarding these new data assets. Participants hoped the linked datasets could be used for joining up care and information, improving efficiency, and improving healthcare provision, but were concerned about missing and inaccurate data, data breaches and hacking, use of data by profit-making organisations, and stigma and discrimination. Findings will be used to underpin governance and engagement strategies for integrated datasets in KSS.

History

Publication status

  • Published

File Version

  • Published version

Journal

Stud Health Technol Inform

ISSN

0926-9630

Publisher

IOS Press

Volume

294

Page range

594-598

Event location

Netherlands

Department affiliated with

  • Primary Care and Public Health Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2022-06-09

First Open Access (FOA) Date

2022-06-09

First Compliant Deposit (FCD) Date

2022-06-09

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