The impact of patient and public involvement in the SlowMo study: reflections on peer innovation

Greenwood, Kathryn, Robertson, Sam, Vogel, Evelin, Vella, Claire, Ward, Thomas, McGourty, Alison, Sacadura, Cat, Hardy, Amy, Rus-Calafell, Mar, Collett, Nicola, Emsley, Richard, Freeman, Daniel, Fowler, David, Kuipers, Elizabeth, Bebbington, Paul, Dunn, Graham and Garety, Philippa (2022) The impact of patient and public involvement in the SlowMo study: reflections on peer innovation. Health Expectations, 25 (1). pp. 191-202. ISSN 1369-6513

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Abstract

Background
The SlowMo study demonstrated the effects of SlowMo, an eight-session digitally supported reasoning intervention, on paranoia in a large-scale randomized-controlled trial with 362 participants with schizophrenia-spectrum psychosis.

Aim
The current evaluation aimed to investigate the impact of Patient and Public Involvement (PPI) in the SlowMo study.

Method
PPI members were six women and three men from Sussex, Oxford and London with experience of using mental health services for psychosis. They received training and met at least 3-monthly throughout the project. The impact of PPI was captured quantitatively and qualitatively through (i) a PPI log of recommendations and implementation; (ii) written subjective experiences of PPI members; (iii) meeting minutes; and (iv) outputs produced.

Results
The PPI log revealed 107 recommendations arising from PPI meetings, of which 87 (81%) were implemented. Implementation was greater for recruitment-, data collection- and organization-related actions than for dissemination and emergent innovations. Qualitative feedback revealed impacts on study recruitment, data collection, PPI participants' confidence, knowledge, career aspirations and society more widely. Outputs produced included a film about psychosis that aired on BBC primetime television, novel webpages and journal articles. Barriers to PPI impact included geography, travel, funding, co-ordination and well-being.

Discussion
A future challenge for PPI impact will be the extent to which peer innovation (innovative PPI-led ideas) can be supported within research study delivery.

Patient and Public Contribution
Planned Patient and Public Contribution in SlowMo comprised consultation and collaboration in (i) design, (ii) recruitment, (iii) qualitative interviews and analysis of service users' experiences of SlowMo therapy and (iv) dissemination.

Item Type: Article
Keywords: Cognitive Behavioural Therapy, Patient and Public Involvement (PPI), digital health, impact, mobile applications, paranoia
Schools and Departments: School of Psychology > Psychology
SWORD Depositor: Mx Elements Account
Depositing User: Mx Elements Account
Date Deposited: 25 Oct 2021 07:30
Last Modified: 22 Mar 2022 09:30
URI: http://sro.sussex.ac.uk/id/eprint/102434

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