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Consensus Statement on Public Involvement and Engagement with Data Intensive Health Research.pdf (1.19 MB)

Consensus statement on public involvement and engagement with data intensive health research

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posted on 2023-06-10, 01:06 authored by Mhairi Aitken, Mary P Tully, Carol Porteous, Simon Denegri, Sarah Cunningham-Burley, Natalie Banner, Corri Black, Michael Burgess, Lynsey Cross, Johannes van Delden, Elizabeth FordElizabeth Ford, Sarah Fox, Natalie Fitzpatrick, Kay Gallacher, Catharine Goddard, others
This consensus statement reflects the deliberations of an international group of stakeholders with a range of expertise in public involvement and engagement (PI&E) relating to data-intensive health research. It sets out eight key principles to establish a secure role for PI&E in and with the research community internationally and ensure best practice in its execution. Our aim is to promote culture change and societal benefits through ensuring a socially responsible trajectory for innovations in this field.

History

Publication status

  • Published

File Version

  • Published version

Journal

International Journal of Population Data Science

ISSN

2399-4908

Publisher

Swansea University

Issue

1

Volume

4

Page range

1-6

Article number

a586

Event location

Wales

Department affiliated with

  • Primary Care and Public Health Publications

Full text available

  • Yes

Peer reviewed?

  • Yes

Legacy Posted Date

2021-09-23

First Open Access (FOA) Date

2021-09-23

First Compliant Deposit (FCD) Date

2021-09-23

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