http://sro.sussex.ac.uk/ http://sro.sussex.ac.uk/images/sitelogo.png http://sro.sussex.ac.uk/ Thu, 16 Nov 2023 06:06:00 +0000 Thu, 16 Nov 2023 06:06:00 +0000 en Thu, 26 May 2022 06:49:50 +0100 http://sro.sussex.ac.uk/id/eprint/106089/ http://sro.sussex.ac.uk/id/eprint/106089/ Fallowfield, Lesley, Solis-Trapala, Ivonne, Starkings, Rachel, May, Shirley, Matthews, Lucy, Eccles, Diana, Evans, D Gareth, Turnbull, Clare, Crawford, Gillian and Jenkins, Valerie (2022) Talking about Risk, UncertaintieS of Testing IN Genetics (TRUSTING): development and evaluation of an educational programme for healthcare professionals about BRCA1 & BRCA2 testing. British Journal of Cancer. ISSN 0007-0920 Fri, 08 Apr 2022 07:11:53 +0100 http://sro.sussex.ac.uk/id/eprint/105234/ http://sro.sussex.ac.uk/id/eprint/105234/ Di Maio, M, Basch, E, Denis, F, Fallowfield, L J, Ganz, P A, Howell, D, Kowalski, C, Perrone, F, Stover, A M, Sundaresan, P, Warrington, L, Zhang, L, Apostolidis, K, Freeman-Daily, J, Ripamonti, C I and Santini, D (2022) The role of patient-reported outcome measures in the continuum of cancer clinical care: ESMO Clinical Practice Guideline. Annals of Oncology. ISSN 0923-7534 Thu, 17 Mar 2022 07:42:53 +0000 http://sro.sussex.ac.uk/id/eprint/104894/ http://sro.sussex.ac.uk/id/eprint/104894/ Glasspool, Rosalind, Wheelwright, Sally, Bolton, Victoria, Calman, Lynn, Cummings, Amanda, Elledge, Beryl, Foster, Rebecca, Frankland, Jane, Smith, Peter, Stannard, Sebastian, Turner, Joshua, Wright, David and Foster, Claire (2022) Modifiable pre-treatment factors are associated with quality of life in women with gynaecological cancers at diagnosis and one year later: results from the HORIZONS UK national cohort study. Gynecologic Oncology. ISSN 0090-8258 Tue, 07 Dec 2021 09:19:22 +0000 http://sro.sussex.ac.uk/id/eprint/103268/ http://sro.sussex.ac.uk/id/eprint/103268/ Fallowfield, L J, Farewell, D, Jones, H, May, S, Catt, S, Starkings, R and Jenkins, V (2022) IMPARTER, Phase 1 of an intervention to improve patients’ understanding of gene expression profiling tests in breast cancer. Breast Cancer Research and Treatment. ISSN 0167-6806 Fri, 10 Jan 2020 11:04:34 +0000 http://sro.sussex.ac.uk/id/eprint/89266/ http://sro.sussex.ac.uk/id/eprint/89266/ Menlove, Leanne, Crayton, Elise, Kneebone, Ian, Allen-Crooks, Rhani, Otto, Elisabeth and Harder, Helena (2015) Predictors of anxiety after stroke: a systematic review of observational studies. Journal of Stroke and Cerebrovascular Diseases, 24 (6). pp. 1107-1117. ISSN 1052-3057 Fri, 26 Jul 2019 14:56:21 +0100 http://sro.sussex.ac.uk/id/eprint/85126/ http://sro.sussex.ac.uk/id/eprint/85126/ Starkings, Rachel, Jenkins, Valerie and Shilling, Valerie (2019) Insights into the use of social comparisons within an advanced cancer setting. Journal of Psychosocial Oncology Research and Practice, 1 (2). a6 1-6. ISSN 2637-5974 Thu, 25 Jul 2019 09:21:57 +0100 http://sro.sussex.ac.uk/id/eprint/85110/ http://sro.sussex.ac.uk/id/eprint/85110/ Catt, Susan, Matthews, Lucy, May, Shirley, Payne, Heather, Mason, Malcolm and Jenkins, Valerie (2019) Patients’ and partners’ views of care and treatment provided for metastatic castrate resistant prostate cancer in the UK. European Journal Of Cancer Care, 28 (6). pp. 1-9. ISSN 1365-2354 Wed, 12 Jun 2019 08:04:41 +0100 http://sro.sussex.ac.uk/id/eprint/84229/ http://sro.sussex.ac.uk/id/eprint/84229/ Fallowfield, L, Solis-Trapala, I, Starkings, R, Catt, S, May, S and Jenkins, V (2019) Talking about risk in the context of genomic tests (TARGET): development and evaluation of an educational programme for clinicians. Breast Cancer Research and Treatment. ISSN 0167-6806 Wed, 20 Mar 2019 12:07:58 +0000 http://sro.sussex.ac.uk/id/eprint/82657/ http://sro.sussex.ac.uk/id/eprint/82657/ Shilling, Valerie, Starkings, Rachel, Jenkins, Valerie, Cella, David and Fallowfield, Lesley (2019) Development and validation of the caregiver roles and responsibilities scale in cancer caregivers. Quality of Life Research, 28. pp. 1655-1668. ISSN 0962-9343 Fri, 21 Dec 2018 12:54:03 +0000 http://sro.sussex.ac.uk/id/eprint/80948/ http://sro.sussex.ac.uk/id/eprint/80948/ Hinde, Sebastian, Theriou, Chloi, May, Shirley, Matthews, Lucy, Arbon, Amy, Fallowfield, Lesley and Bloomfield, David (2019) The cost-effectiveness of EndoPredict to inform adjuvant chemotherapy decisions in early breast cancer. Health Policy and Technology, 8 (1). pp. 75-83. ISSN 2211-8837 Wed, 05 Dec 2018 09:41:52 +0000 http://sro.sussex.ac.uk/id/eprint/80612/ http://sro.sussex.ac.uk/id/eprint/80612/ Lifford, Kate J, Edwards, Adrian, Burton, Maria, Harder, Helena, Armitage, Fiona, Morgan, Jenna, Caldon, Lisa, Balachandran, Kirsty, Ring, Alistair, Collins, Karren, Reed, Malcolm, Wyld, Lynda and Brain, Kate (2019) Efficient development and usability testing of decision support interventions for older women with breast cancer. Patient Preference and Adherence, 2019 (13). pp. 131-143. ISSN 1177-889X Tue, 20 Nov 2018 12:27:10 +0000 http://sro.sussex.ac.uk/id/eprint/80314/ http://sro.sussex.ac.uk/id/eprint/80314/ Fallowfield, L J (2018) Quality of life assessment using patient reported outcome (PRO) measures - still a Cinderella outcome? Annals of Oncology, 29 (12). pp. 2286-2287. ISSN 0923-7534 Mon, 12 Nov 2018 12:42:58 +0000 http://sro.sussex.ac.uk/id/eprint/80138/ http://sro.sussex.ac.uk/id/eprint/80138/ Fallowfield, Lesley and Jenkins, Valerie (2019) Psychosocial issues in breast cancer. In: Dixon, J Michael and Barber, Matthew (eds.) Breast surgery: a companion to specialist surgical practice, 6th edition. Companion to Specialist Surgical Practice . Elsevier, Edinburgh, pp. 269-274. ISBN 9780702072413 Fri, 09 Nov 2018 10:59:24 +0000 http://sro.sussex.ac.uk/id/eprint/80091/ http://sro.sussex.ac.uk/id/eprint/80091/ Jenkins, V, Solis-Trapala, I, Payne, H, Mason, M, Fallowfield, L, May, S, Matthews, L and Catt, S (2019) Treatment experiences, information needs, pain and quality of life in men with metastatic castrate-resistant prostate cancer: results from the EXTREQOL study. Clinical Oncology, 31 (2). pp. 99-107. ISSN 0936-6555 Fri, 27 Jul 2018 15:54:06 +0100 http://sro.sussex.ac.uk/id/eprint/77424/ http://sro.sussex.ac.uk/id/eprint/77424/ Shilling, Valerie, Starkings, Rachel, Jenkins, Valerie, Cella, David and Fallowfield, Lesley (2018) Development and validation of the patient roles and responsibilities scale in cancer patients. Quality of Life Research, 27 (11). pp. 2923-2934. ISSN 0962-9343 Thu, 17 May 2018 11:37:24 +0100 http://sro.sussex.ac.uk/id/eprint/75907/ http://sro.sussex.ac.uk/id/eprint/75907/ Jenkins, V, Farewell, V, May, S, Catt, S, Matthews, L, Shilling, V, Dickson, J, Simcock, R and Fallowfield, L (2018) Do drugs offering only PFS maintain quality of life sufficiently from a patient’s perspective? Results from AVALPROFS (Assessing the ‘VALue’ to patients of PROgression Free Survival) study. Supportive Care in Cancer, 26 (11). pp. 3941-3949. ISSN 0941-4355 Thu, 12 Apr 2018 08:11:20 +0100 http://sro.sussex.ac.uk/id/eprint/74701/ http://sro.sussex.ac.uk/id/eprint/74701/ Catt, Susan L, Ahmad, Sofia, Collyer, Jeremy, Hardwick, Lauren, Shah, Nahush and Winchester, Lindsay (2018) Quality of life and communication in orthognathic treatment. Journal of Orthodontics, 45 (2). pp. 65-70. ISSN 1465-3125 Tue, 10 Apr 2018 14:51:12 +0100 http://sro.sussex.ac.uk/id/eprint/74708/ http://sro.sussex.ac.uk/id/eprint/74708/ Catt, Susan, Sheward, J, Sheward, E and Harder, H (2018) Cancer survivors’ experiences of a community-based cancer-specific exercise programme: results of an exploratory survey. Supportive Care in Cancer, 26 (9). pp. 3209-3216. ISSN 0941-4355 Tue, 30 Jan 2018 15:13:24 +0000 http://sro.sussex.ac.uk/id/eprint/73236/ http://sro.sussex.ac.uk/id/eprint/73236/ Fallowfield, Lesley, Matthews, Lucy, May, Shirley, Jenkins, Valerie and Bloomfield, David (2018) Enhancing decision-making about adjuvant chemotherapy in early breast cancer following EndoPredict testing. Psycho-Oncology, 27 (4). pp. 1264-1269. ISSN 1057-9249 Tue, 30 Jan 2018 15:09:35 +0000 http://sro.sussex.ac.uk/id/eprint/73235/ http://sro.sussex.ac.uk/id/eprint/73235/ Jenkins, V, Payne, H, Mason, M, May, S, Matthews, L and Catt, S (2018) EXTREQOL identifies ongoing challenges in maximising quality of survival in men with mCRPC. Clinical Oncology, 30 (6). pp. 331-333. ISSN 0936-6555 Thu, 24 Aug 2017 08:26:57 +0100 http://sro.sussex.ac.uk/id/eprint/69904/ http://sro.sussex.ac.uk/id/eprint/69904/ Pivot, X, Verma, S, Fallowfield, L, Müller, V, Lichinister, M, Jenkins, V, Sánchez Muñoz, A, Machackova, Z, Osborne, S and Gligorov, J (2017) Efficacy and safety of subcutaneous trastuzumab and intravenous trastuzumab as part of adjuvant therapy for HER2-positive early breast cancer: final analysis of the randomised, two-cohort PrefHer study. European Journal of Cancer, 86. pp. 82-90. ISSN 0959-8049 Thu, 27 Jul 2017 08:13:22 +0100 http://sro.sussex.ac.uk/id/eprint/69475/ http://sro.sussex.ac.uk/id/eprint/69475/ Harder, Helena, Holroyd, Patrick, Burkinshaw, Lynn, Watten, Phil, Zammit, Charles, Harris, Peter R, Good, Anna and Jenkins, Val (2017) A user-centred approach to developing bWell, a mobile app for arm and shoulder exercises after breast cancer treatment. Journal of Cancer Survivorship, 11 (6). pp. 732-742. ISSN 1932-2259 Tue, 28 Mar 2017 08:22:14 +0100 http://sro.sussex.ac.uk/id/eprint/67191/ http://sro.sussex.ac.uk/id/eprint/67191/ Fallowfield, Lesley, Solis-Trapala, Ivonne, Menon, Usha, Langridge, Carolyn, May, Shirley, Jacobs, Ian and Jenkins, Valerie (2017) The effect of ovarian cancer screening on sexual activity and functioning: results from the UK collaborative trial of ovarian cancer screening RCT. British Journal of Cancer, 116 (8). pp. 1111-1117. ISSN 0007-0920 Tue, 29 Nov 2016 12:27:39 +0000 http://sro.sussex.ac.uk/id/eprint/65734/ http://sro.sussex.ac.uk/id/eprint/65734/ Catt, Susan, Starkings, Rachel, Shilling, Valerie and Fallowfield, Lesley (2016) Patient-reported outcome measures of the impact of cancer on patient’s everyday lives: a systematic review. Journal of Cancer Survivorship, 11 (2). pp. 211-232. ISSN 1932-2267 Tue, 27 Sep 2016 13:59:44 +0100 http://sro.sussex.ac.uk/id/eprint/62343/ http://sro.sussex.ac.uk/id/eprint/62343/ Morris, Christopher, Janssens, Astrid, Allard, Amanda, Thompson Coon, Joanne, Shilling, Valerie, Tomlinson, Richard, Williams, Jane, Fellowes, Andrew, Rogers, Morwenna, Allen, Karen, Beresford, Bryony, Green, Colin, Jenkinson, Crispin, Tennant, Alan and Logan, Stuart (2014) Informing the NHS Outcomes Framework: evaluating meaningful health outcomes for children with neurodisability using multiple methods including systematic review, qualitative research, Delphi survey and consensus meeting. Project Report. NIHR Journals Library, Southampton (UK). Tue, 27 Sep 2016 13:29:14 +0100 http://sro.sussex.ac.uk/id/eprint/62340/ http://sro.sussex.ac.uk/id/eprint/62340/ Shilling, Valerie, Morris, Christopher, Thompson-Coon, Jo, Ukoumunne, Obioha, Rogers, Morwenna and Logan, Stuart (2013) Peer support for parents of children with chronic disabling conditions: a systematic review of quantitative and qualitative studies. Developmental Medicine & Child Neurology, 55 (7). pp. 602-609. ISSN 0012-1622 Tue, 27 Sep 2016 13:20:32 +0100 http://sro.sussex.ac.uk/id/eprint/62346/ http://sro.sussex.ac.uk/id/eprint/62346/ Shilling, V, Bailey, S, Logan, S and Morris, C (2015) Peer support for parents of disabled children part 1: perceived outcomes of a one-to-one service, a qualitative study. Child: Care, Health and Development, 41 (4). pp. 524-536. ISSN 0305-1862 Tue, 27 Sep 2016 13:16:35 +0100 http://sro.sussex.ac.uk/id/eprint/62345/ http://sro.sussex.ac.uk/id/eprint/62345/ Shilling, V, Bailey, S, Logan, S and Morris, C (2015) Peer support for parents of disabled children part 2: how organizational and process factors influenced shared experience in a one-to-one service, a qualitative study. Child: Care, Health and Development, 41 (4). pp. 537-546. ISSN 0305-1862 Tue, 27 Sep 2016 13:11:20 +0100 http://sro.sussex.ac.uk/id/eprint/62336/ http://sro.sussex.ac.uk/id/eprint/62336/ Shilling, V, Williamson, P R, Hickey, H, Sowden, E, Smyth, R L and Young, B (2011) Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study. Project Report. NIHR Journals Library. Tue, 27 Sep 2016 11:13:04 +0100 http://sro.sussex.ac.uk/id/eprint/62344/ http://sro.sussex.ac.uk/id/eprint/62344/ Morris, Christopher, Janssens, Astrid, Shilling, Valerie, Allard, Amanda, Fellowes, Andrew, Tomlinson, Richard, Williams, Jane, Thompson Coon, Jo, Rogers, Morwenna, Beresford, Bryony, Green, Colin, Jenkinson, Crispin, Tennant, Alan and Logan, Stuart (2015) Meaningful health outcomes for paediatric neurodisability: stakeholder prioritisation and appropriateness of patient reported outcome measures. Health and Quality of Life Outcomes, 13. p. 87. ISSN 1477-7525