Peer support systematic review post review pre-print.pdf (500.44 kB)
Peer support for parents of children with chronic disabling conditions: a systematic review of quantitative and qualitative studies
journal contribution
posted on 2023-06-09, 02:29 authored by Valerie ShillingValerie Shilling, Christopher Morris, Jo Thompson-Coon, Obioha Ukoumunne, Morwenna Rogers, Stuart LoganAIM: To review the qualitative and quantitative evidence of the benefits of peer support for parents of children with disabling conditions in the context of health, well-being, impact on family, and economic and service implications. Method: We comprehensively searched multiple databases. Eligible studies evaluated parent-to-parent support and reported on the psychological health and experience of giving or receiving support. There were no limits on the child's condition, study design, language, date, or setting. We sought to aggregate quantitative data; findings of qualitative studies were combined using thematic analysis. Qualitative and quantitative data were brought together in a narrative synthesis. Results: Seventeen papers were included: nine qualitative studies, seven quantitative studies, and one mixed-methods evaluation. Four themes were identified from qualitative studies: (1) shared social identity, (2) learning from the experiences of others, (3) personal growth, and (4) supporting others. Some quantitative studies reported a positive effect of peer support on psychological health and other outcomes; however, this was not consistently confirmed. It was not possible to aggregate data across studies. No costing data were identified. Conclusion: Qualitative studies strongly suggest that parents perceive benefit from peer support programmes, an effect seen across different types of support and conditions. However, quantitative studies provide inconsistent evidence of positive effects. Further research should explore whether this dissonance is substantive or an artefact of how outcomes have been measured. © The Authors © 2013 Mac Keith Press.
History
Publication status
- Published
File Version
- Accepted version
Journal
Developmental Medicine & Child NeurologyISSN
0012-1622Publisher
Wiley-BlackwellExternal DOI
Issue
7Volume
55Page range
602-609Department affiliated with
- Sussex Health Outcomes Research & Education in Cancer (SHORE-C) Publications
Research groups affiliated with
- Sussex Health Outcomes Research and Education in Cancer Publications
Full text available
- Yes
Peer reviewed?
- Yes
Legacy Posted Date
2016-09-27First Open Access (FOA) Date
2016-09-27First Compliant Deposit (FCD) Date
2016-09-27Usage metrics
Categories
No categories selectedKeywords
childhood diseasedisabilityexperiencefamilyhumanlanguagelearningmental healthparentpeer grouppilot studypriority journalqualitative researchquantitative studyreviewsocial statussystematic reviewthematic analysiswellbeingadultchilddisabled personpsychological aspectsocial supportDisabled PersonsHumansParents
Licence
Exports
RefWorks
BibTeX
Ref. manager
Endnote
DataCite
NLM
DC