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Layers of listening: qualitative analysis of the impact of early intervention services for first-episode psychosis on carers' experiences
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posted on 2023-06-09, 02:15 authored by Anna Lavis, Helen Lester, Linda Everard, Nicholas Freemantle, Tim Amos, David FowlerDavid Fowler, Jo Hodgekins, Peter Jones, Max Marshall, Vimal Sharma, John Larsen, Paul McCrone, Swaran Singh, Jo Smith, Max BirchwoodBackground Early intervention services (EIS) comprise low-stigma, youth-friendly mental health teams for young people undergoing first-episode psychosis (FEP). Engaging with the family of the young person is central to EIS policy and practice. Aims By analysing carers' accounts of their daily lives and affective challenges during a relative's FEP against the background of wider research into EIS, this paper explores relationships between carers' experiences and EIS. Method Semi-structured longitudinal interviews with 80 carers of young people with FEP treated through English EIS. Results Our data suggest that EIS successfully aid carers to support their relatives, particularly through the provision of knowledge about psychosis and medications. However, paradoxical ramifications of these user-focused engagements also emerge; they risk leaving carers' emotions unacknowledged and compounding an existing lack of help-seeking. Conclusions By focusing on EIS's engagements with carers, this paper draws attention to an urgent broader question: as a continuing emphasis on care outside the clinic space places family members at the heart of the care of those with severe mental illness, we ask: who can, and should, support carers, and in what ways?
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Publication status
- Published
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- Published version
Journal
The British Journal of PsychiatryISSN
0007-1250Publisher
Royal College of PsychiatristsExternal DOI
Issue
2Volume
207Page range
135-142Department affiliated with
- Psychology Publications
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- No
Peer reviewed?
- Yes
Legacy Posted Date
2016-07-26First Compliant Deposit (FCD) Date
2016-07-26Usage metrics
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