RUSTED_et_al_Improving_the_Experience_of_Dementia_and_Enhancing_Active_Life.pdf (402.53 kB)
Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study
journal contribution
posted on 2023-06-08, 21:30 authored by Linda Clare, Sharon M Nelis, Catherine Quinn, Anthony Martyr, Catherine Henderson, John V Hindle, Ian R Jones, Roy W Jones, Martin Knapp, Michael D Kopelman, Robin G Morris, James A Pickett, Jennifer Rusted, Nada M Savitch, Jeanette M Thom, Christina R VictorBackground: Enabling people with dementia and carers to ‘live well’ with the condition is a key United Kingdom policy objective. The aim of this project is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what ‘living well’ means from the perspective of people with dementia and carers. Methods/Design: Over a two-year period, 1500 people with early-stage dementia throughout Great Britain will be recruited to the study, together with a carer wherever possible. All the participants will be visited at home initially and again 12 months and 24 months later. This will provide information about the way in which well-being, life satisfaction and quality of life are affected by social capitals, assets and resources, the challenges posed by dementia, and the ways in which people adjust to and cope with these challenges. A smaller group will be interviewed in more depth. Discussion: The findings will lead to recommendations about what can be done by individuals, communities, health and social care practitioners, care providers and policy-makers to improve the likelihood of living well with dementia.
Funding
Living Well With Dementia; G1362; ESRC-ECONOMIC & SOCIAL RESEARCH COUNCIL; ES/L001853/1
History
Publication status
- Published
File Version
- Published version
Journal
Health and Quality of Life OutcomesISSN
1477-7525Publisher
BioMed CentralExternal DOI
Volume
12Page range
164Department affiliated with
- Psychology Publications
Full text available
- Yes
Peer reviewed?
- Yes
Legacy Posted Date
2015-07-09First Open Access (FOA) Date
2015-07-09First Compliant Deposit (FCD) Date
2015-07-09Usage metrics
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