Threat to valued elements of life: the experience of dementia across three ethnic groups

Lawrence, Vanessa, Samsi, Kritika, Banerjee, Sube, Morgan, Craig and Murray, Joanna (2011) Threat to valued elements of life: the experience of dementia across three ethnic groups. Gerontologist, 51 (1). pp. 39-50. ISSN 1758-5341

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Abstract

PURPOSE

There is a fundamental knowledge gap regarding the experience of dementia within minority ethnic groups in the United Kingdom and elsewhere. The present study examined the subjective reality of living with dementia from the perspective of people with dementia within the 3 largest ethnic groups in the United Kingdom.

DESIGN AND METHODS

This was a qualitative study in which in-depth individual interviews were conducted with 11 Black Caribbean, 9 south Asian, and 10 White British older people with dementia. The lack of information in this area prompted the use of a grounded theory approach.

RESULTS

The main theme to emerge from the interviews with the people with dementia was "threat to valued elements of life." Participants engaged in a process of appraisal in which they assessed the degree to which their condition and support needs interfered with valued elements of life. The analysis revealed that each element of this process was culturally informed.

IMPLICATIONS

There is potential for modifying beliefs to reduce the perceived threat of dementia and for family and professional carers to promote the roles, relationships, and activities that each person with dementia values. The findings outlined in this paper can inform the development of a culturally sensitive approach.

Item Type: Article
Additional Information: Impact Factor: 2.481
Keywords: Dementia Qualitative Methods Cultural Differences Subjective experience
Schools and Departments: Brighton and Sussex Medical School > Clinical and Experimental Medicine
Brighton and Sussex Medical School > Neuroscience
Subjects: R Medicine
Related URLs:
Depositing User: Patricia Butler
Date Deposited: 03 Dec 2012 18:54
Last Modified: 25 Sep 2017 11:35
URI: http://sro.sussex.ac.uk/id/eprint/43217
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