Dying well with dementia: qualitative examination of end-of-life care

Lawrence, Vanessa, Samsi, Kritika, Murray, Joanna, Harari, Danielle and Banerjee, Sube (2011) Dying well with dementia: qualitative examination of end-of-life care. The British journal of psychiatry : the journal of mental science, 201 (5). pp. 417-22. ISSN 1472-1465

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Abstract

BACKGROUND

People with dementia often die badly, receiving end-of-life care of poorer quality than that given to those who are cognitively intact.

AIMS

To define good end-of-life care for people with dementia and identify how it can be delivered across care settings in the UK.

METHOD

In-depth interviews were conducted with 27 bereaved family carers and 23 care professionals recruited from the community, care homes, general hospitals and continuing care units. Data were analysed using the constant comparison method.

RESULTS

The data highlighted the challenge and imperative of 'dementia-proofing' end-of-life care for people with dementia. This requires using dementia expertise to meet physical care needs, going beyond task-focused care and prioritising planning and communication with families.

CONCLUSIONS

The quality of end-of-life care exists on a continuum across care settings. Together, the data reveal key elements of good end-of-life care and that staff education, supervision and specialist input can enable its provision.

Item Type: Article
Additional Information: Impact Factor: 6.619
Schools and Departments: Brighton and Sussex Medical School > Clinical Medicine
Subjects: R Medicine > R Medicine (General)
Related URLs:
Depositing User: Patricia Butler
Date Deposited: 30 Nov 2012 15:44
Last Modified: 30 Nov 2012 15:44
URI: http://sro.sussex.ac.uk/id/eprint/43199
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