Consenting futures: professional views on social, clinical and ethical aspects of information feedback to embryo donors in human embryonic stem cell research

Ehrich, K, Williams, C and Farsides, B (2012) Consenting futures: professional views on social, clinical and ethical aspects of information feedback to embryo donors in human embryonic stem cell research. Clinical Ethics, 5 (2). pp. 77-85. ISSN 1758-101X

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Abstract

This paper reports from an ongoing multidisciplinary, ethnographic study that is exploring the views, values and practices (the ethical frameworks) drawn on by professional staff in assisted conception units and stem cell laboratories in relation to embryo donation for research purposes, particularly human embryonic stem cell (hESC) research, in the UK. We focus here on the connection between possible incidental findings and the circumstances in which embryos are donated for hESC research, and report some of the uncertainties and dilemmas of our staff participants. We explore the views of our study participants in relation to two themes: (1) rights to information and anticipating how donors might be informed about future research findings and (2) occupational work goals and trust.

Item Type: Article
Schools and Departments: Brighton and Sussex Medical School > Clinical Medicine
Subjects: R Medicine > R Medicine (General) > R723 Medical philosophy. Medical ethics
Depositing User: Ellen Thomas
Date Deposited: 01 Nov 2012 15:40
Last Modified: 01 Nov 2012 15:40
URI: http://sro.sussex.ac.uk/id/eprint/41584
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