Eating-derived pleasure in amyotrophic lateral sclerosis as a predictor of non-oral feeding

Johnson, Julia, Leigh, Nigel, Shaw, Christopher E, Ellis, Cathy, Burman, Rachel and Al-Chalabi, Ammar (2012) Eating-derived pleasure in amyotrophic lateral sclerosis as a predictor of non-oral feeding. Amyotrophic Lateral Sclerosis, 13 (6). pp. 555-559. ISSN 1471-180X

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Abstract

Our objective was to examine the pleasure derived from eating in patients with advanced ALS and how this affects advice to have a gastrostomy. Patients with advanced ALS completed a visual analogue scale indicating the pleasure they derived from eating. Data were also collected on the severity of swallow using the Hillel scale, the independent feeding status, and on whether gastrostomy was accepted or not. The findings from 38 consecutive patients indicate that pleasure derived from eating is a powerful indicator of a person's acceptance of gastrostomy. In conclusion, the study showed that a simple analogue scale is quick and practical in a clinical setting even in severely compromised people with ALS and that the eating pleasure score was a strong predictor of the final decision to accept gastrostomy placement (p = 12.2 = 10(-4)).

Item Type: Article
Keywords: Dysphagia, gastrostomy, visual analogue scale, motor neuron disease, amyotrophic lateral sclerosis
Schools and Departments: Brighton and Sussex Medical School > Clinical Medicine
Subjects: R Medicine > RC Internal medicine > RC0321 Neurosciences. Biological psychiatry. Neuropsychiatry > RC0346 Neurology. Diseases of the nervous system Including speech disorders
Depositing User: Patricia Butler
Date Deposited: 09 Nov 2012 15:35
Last Modified: 02 Jul 2013 11:29
URI: http://sro.sussex.ac.uk/id/eprint/41500
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