Tailoring information provision and consent processes to research contexts: the value of rapid assessments

Bull, S, Farsides, B and Tekola Ayele, F (2012) Tailoring information provision and consent processes to research contexts: the value of rapid assessments. Journal of Empirical Research on Human Research Ethics, 7 (1). pp. 37-52. ISSN 1556-2646

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Abstract

Guidance requires that consent processes for research be appropriately tailored to their cultural context. This paper discusses the use of rapid assessments to identify cultural and ethical issues arising when explaining research in studies in The Gambia and Ethiopia. The assessments provided insights into appropriate ways of providing information to minimize the risk of stigmatizing vulnerable research populations; research participants' views about the most important information to provide about research and their understandings of research; and perceived constraints upon reaching voluntary decisions about participation. These insights demonstrate that rapid assessments are a relatively quick and inexpensive intervention that can provide valuable information to assist in the tailoring of information provision and consent processes to research context while maintaining and enhancing participants' fundamental protections.

Item Type: Article
Schools and Departments: Brighton and Sussex Medical School > Clinical and Experimental Medicine
Subjects: R Medicine > R Medicine (General) > R723 Medical philosophy. Medical ethics
Depositing User: Ellen Thomas
Date Deposited: 08 Nov 2012 09:21
Last Modified: 08 Nov 2012 09:21
URI: http://sro.sussex.ac.uk/id/eprint/41401
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