Supportive follow-up in patients treated with radical intent for high-grade glioma

Catt, Susan, Chalmers, Anthony, Critchley, Giles and Fallowfield, Lesley (2012) Supportive follow-up in patients treated with radical intent for high-grade glioma. CNS Oncology, 1 (1). pp. 39-48. ISSN 2045-0907

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Abstract

On-going supportive follow-up for patients with malignant glioma lacks good evidence to define and guide practice, and certain approaches have previously been criticised. In the UK it commonly involves routine hospital visits with imaging to monitor treatment effects and detect disease progression. Aims: Through use of an observational study evaluate and compare oncologist-led follow-up with a multidisciplinary group follow-up method from the perspective of patients and caregivers. Materials & Methods: Forty patients, and 32 of their caregivers, were recruited 3 months after completing radical radiotherapy treatment. Face-to-face interviews conducted at home with patients gathered information about access to and experiences of follow-up services. Standardised questionnaires measured patients’ quality of life and unmet care needs, and caregivers’ psychological wellbeing. Assessment was repeated three times over a 6-month period.Results: Inevitable attrition left 26/40 patients and 19/32 carers with complete data. Most (65%) patients’ quality of life improved or was maintained over the study period. However, psychological support for patients and carers was suboptimal, notably 56% of carers had probable psychiatric morbidity. Though few significant differences were found between the two follow-up methods, multidisciplinary follow-up provided better continuity of care and more efficient test result provision.Conclusions: Innovative interventions are required to ameliorate psychological distress in patients and caregivers.

Item Type: Article
Keywords: high-grade glioma, brain tumours, service delivery, supportive care, follow up
Schools and Departments: Brighton and Sussex Medical School > Sussex Health Outcomes Research & Education in Cancer (SHORE-C)
Subjects: R Medicine
R Medicine > RC Internal medicine > RC0254 Neoplasms. Tumors. Oncology Including cancer and carcinogens
Depositing User: Kathryn Monson
Date Deposited: 26 Oct 2012 11:48
Last Modified: 14 Apr 2016 15:51
URI: http://sro.sussex.ac.uk/id/eprint/40946
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Project NameSussex Project NumberFunderFunder Ref
Supportive interventions in cancer.G0004CANCER RESEARCH UKC54/A7374